Isnardo, we are told, in spite of the fact that he led an extremely ascetic life, was very stout, and physical exertion of any kind was a matter of much difficulty for him. . . . On one occasion a scoffer ridiculing the speaker’s corpulence shouted out, “I could no more believe in the holiness of an old porpoise like Brother Isnardo than I could believe that that barrel there would jump of itself and break my leg.” Whereupon, we are told, the barrel did fall upon his leg and crush it.
He wrought other miracles as well, but that’s the one that everyone remembers.
I’m about a year overdue on a personal update. Short version: It’s good. Very, very good.
How good is it? So good that if I don’t work and workout enough every day, I get restless.
And that’s about all there is to say. About me, anyhow.
I thought I’d post an update now because the last of my homeschoolers is starting school next week, and that can make people think, “Something must be wrong,” or, “The mother must be burned out,” or stuff like that. My close homeschooling friends are aware that L. & I were due for a change of format, and we looked into creating a multi-day hybrid school (which may yet happen a different year); both of us seem to do better when we’re working with a group of friends rather than just the two of us solo. But I would have gladly transitioned that direction and kept on homeschooling.
What happened, though, is that A.’s 6th grade teacher got to talking about schools for next year (for A.). My 8th-grade homeschooler L. & I did the advance work scoping out a school the teacher suggested we look into, and L. loved the school. It seemed ridiculous to tell a kid that she shouldn’t try a thing she really wants to do, that looks like it could be a good option for her in terms of her total formation, and which was a realistic option for our family. Starting at the midterm in 8th grade (at the administration’s invitation) seemed like a wise idea, since it allows L. to give the school a try before the pressure of high school credit- and GPA-tracking kicks in.
Something fun: We were nervous about the school’s placement exams. L. is a super-bright, extremely observant and creative kid, with an undeniable knack for problem-solving, but test-taking is not her strong suit. She’s an outside-the-box thinker, and she doesn’t excel at working under pressure. The school (small, church-operated) is not equipped to provide extensive learning support services, so they assess students prior to admitting them to make sure the students are coming in on grade level.
We were a little worried, because I grade that child’s math tests. I know she can solve the problems (because she can explain how to solve them, teach other people, etc.), but her tests don’t always show it. She sat through a day of 8th grade classes and said she was confident she could do the work, and I trusted her judgement on that — but wasn’t sure the tests would agree with her assessment.
Much to her surprise, even though she thought she did poorly on the math exam (and perhaps she did), she placed firmly at grade level. Double surprise: She placed in a 12th+ grade level for reading comprehension. (Spelling . . . not so much. But we knew that was coming. Not a show-stopper.)
Sooo . . . guess that homeschooling thing was going okay.
She’s excited. I’m happy for her. And now I’m figuring out what my new occupation is going to be.
Here’s a nice hiking photo from France last summer. By “Here’s a nice hiking photo . . .” we mean, “Why yes, it’s going very well, thank you.”
The most painful fallacy I see among Catholics is the false dichotomy between “social justice” and “life issues.” It’s moldering baggage from the Church’s political divisions over the last fifty years or so: We know that a branch of dissenting Catholics labeled themselves “social justice” warriors, and so our alarm bells go off whenever we hear someone talking in vague terms about peace and justice and not much clear doctrine.
We have to cut this out.
Catholics who believe the entirety of the Catholic faith are not obliged to hand over a portion of our faith to agnostics-in-Catholic-clothing. We get to own the whole package: the Trinity, the Church, the Sacraments, Scripture, and the entire Christian moral life. We don’t have to settle for our slice of the “pelvic issue” pie and doggedly shun any topic we fear might have somehow, somewhere, been enjoyed by a Democrat. We certainly don’t have to swallow the line that justice with regards to immigrants, the environment, workers, prisoners, or any other category popular on the Left can thereby only be solved by the Left.
Bitterness isn’t born ex nihilo. Bitterness is the festering of a spiritual wound, and many Catholics are infected by bitterness because they have suffered real, penetrating, stinging wounds at the hands of their fellows.
When you see someone being rabidly ugly, that didn’t come from nowhere.
When it’s you being rabidly ugly, it often feels like “righteous anger.”
Hmmn. Are you filled with a sense of peace? Do people generally agree that the way you speak and act is gentle and life-giving? Do even some of your opponents speak of you respectfully, because your are well-known as someone who is rational, calm, and has good sound reasons for your beliefs?
Or is it maybe possible that, fault of the hurt you’ve endured at the hands of people who had no right to treat you that way, you’ve started to get a little bitter?
I wish to thank everyone who has shared my crowd-sourcing post, and those who have given many helpful responses. Every clue is a good clue.
Meanwhile, this is what relapsing-remitting chronic illness is like:
After six months of being a completely normal person for the first time in years, I get whammed with the Return of the Thing early last week. It arrived disguised as a week or two of feeling not-quite-right, and then a bit of a cough when I woke up Tuesday and then Pow! Done.
So I get through the bare-minimum on the schedule (a schedule written for normal people, because I was a normal person a week ago), but not the whole thing. Thank you caffeine I had a super day Friday, and went to bed excited about Saturday, only to, you know, sleep through Saturday. Oops.
Sunday morning pain is down and I’m excited about Sunday, but, whoops, remember that thing where talking makes you lightheaded? Yeah, I haven’t had that in six months. Sure I mic’d up the other week to talk to a room full of eight people, but that was erring on the side of caution, mostly, though okay yes I know that talking loudly is not a great idea even with the Normal Self.
Anyhow, come Sunday talking was right out. Even lip-syncing was a no-go. Worst case of light-headed-while-talking I’ve had in years. Wicked enough I was glad I had a student-driver to do the driving home from church after Mass. I did some talking to some people anyway, because I am not nearly the recluse people like me say that I am, then went home after Mass and slept that off. Went to a friends’ birthday party, sat around listening to people and avoiding talking (mostly), and had a wonderful couple hours and then went home and slept that off.
Tip: If you do something that makes you feel faint, that might make you tired after a while. Even if you enjoy the activity! It’s like your brain doesn’t consider that sustainable behavior.
So I wake up for the third time Sunday and it’s still Sunday, and I’ve been judiciously avoiding junk food this past week despite the fact that it’s Easter and only heretics avoid junk food during Easter, and since I do make an honest effort to keep the commandments, I was practically obliged to have part of one these with dinner:
For you uncultured heathens, that would be beer with coffee in it.
And then I felt like going for a walk, which I figured would be short, and I grabbed my rosary, which I figured I would end up not praying because one of the comorbidities of feeling light-headed while talking is losing the ability to keep track of prayers silently either, but you never know so I took it.
I thought I’d be dragging myself home in two minutes, and I was wrong.
My head had been cured by the coffee-beer. (Or something.) I prayed the whole dang thing including the extra litany of intentions (you could be on there) I try to add at the end, and that was impressive because when I am flopping around the house uselessly exhausted, Rosary and housework are the first things to go, because trying to keep the commandments and actually keeping them are two different things.
The coffee-beer didn’t even taste as good as it should have. But it effected the cure.
Temporarily. The thing is back now. Sheesh.
Did you know that there exist certain neurological disorders whose symptoms are best improved by alcohol? Neither did I, until I read about one of them this weekend, I can’t remember which. Unfortunately, coffee-beer is, like nearly all the other pharmaceuticals used to treat unpleasant brain problems, loaded with potential for untoward side effects, so you can’t just have it all the time. And you really wouldn’t want to, I hope.
(1) I finally met the physician I’d been referred to last October, and now I know why there was a seven-month wait on appointments. The guy is both competent and humane (like Tod Worner, but a different guy). I like that in a doctor.
(2) I’d been planning to tell him everything’s fine now, but actually it’s not fine. I’ve had a wind-up of fatigue and the same kind of pain I was having last fall — it was still fairly mild on Thursday, but is getting more rather than less intense.
The purpose of this post is to try to find out if anyone else has experienced the thing I’m getting. The rheumatologist has never heard of it, and he’s pretty experienced in his field, and he is also familiar with the types of pain associated with disorders outside his field. The internet isn’t giving up much so far, either. But rare disorders exist, and so conceivably there are people in the world who either get this thing or have seen it in their practice.
If you are that person, my e-mail is below, scroll down to the bottom.
If you are not that person, help yourself to the blog discussion group for the purpose of general commiserating or talking about the thing you get that isn’t like my thing but you still want to talk about it. Please do not e-mail me with those well-meant comments, because I am notoriously bad at keeping up with my e-mail as it is.
Do please share this post around, though. There are sharing buttons below to make that easy for you.
(Please assure helpful strangers that I’m not interested in talking about religion or politics with them. My rheumatologist isn’t really into that. This is strictly a medical-bleg.)
The syndrome we’re talking about is this:
(a) Muscle pain. Not joints, not skin, not your stomach or your sinuses, none of that. Feels like it’s muscles.
(b) Aching predominates, some burning, and the odd needle-like stab.
(c) Affects muscles that have been recently exercised (in the past day or two). So usually legs, since I’m a person who walks, but if I did an abdominal workout it’ll be abs as well, if I did a lot of upper body stuff it could be arms or shoulders, etc etc. It is utterly unlike normal post-exercise muscle soreness. Do not make me lecture you on how experienced I am with the normal stuff. It is not that. Not. at. all.
(d) The pain only comes on when the muscle is at rest. (I get some calf pain with use, but let’s ignore that since it’s distracting. I want to focus on the more perplexing stuff.) By “at rest” I mean when the muscle is relaxed, for example if you’re sitting down your legs might be relaxed even if your upper body is engaged in some activity. So it’s particularly noticeable when laying down during the day for some reason, or when going to bed, but it certainly does not require the whole body to be relaxed. Time of day is irrelevant. The key factor is that the muscle that starts hurting is not presently doing any work.
(e) The pain is temporarily relieved by movement, stretching, or pressure, but returns as soon as the muscle is again completely at rest.
(So if I’m sitting and my leg starts to hurt, I can fidget and the pain goes away. As soon as I forget to fidget, it’ll come back. Unfortunately, one cannot fidget oneself to sleep.)
This presentation is extremely consistent. It started intermittently about a year ago, became significantly problematic last fall, had largely gone away for six months, and has returned in exactly the same form as previously. This consistency is why I’m persuaded it’s a physiological problem that surely other people have experienced.
Some additional notes that may or may not be helpful:
(f) There is no correlation with mental state. Thinking or not thinking about it has no bearing on whether the pain shows up; being anxious or relaxed or distracted or you-name-it is irrelevant.
No relationship to menstrual cycle either. I haven’t detected any other certain associations, other than fatigue and exercise. (This prospect does not really keep me from exercising, because don’t be stupid, you need to exercise. But the sleep-deprivation? Yes, that will slow me down a lot.)
(g) Mine does respond to ibuprofen pretty well most of the time. (I try to avoid taking it habitually though; I only use it if I’m really desperate for sleep.)
(h) For those who are curious, yes my dysautonomia symptoms are ramping back up as well. So there does seem to be a strong correlation between when I’m feeling all that stuff and the pain-thing.
(i) In addition to the muscle pain, I also get random fasciculations along the same pattern, but they are not as prevalent. The muscle that is twitching is not a muscle that is hurting. (Probably because this particular thing involves muscles not hurting if they’re being used?)
(j) My diet is great and I take all the things and do all the things and present as a very healthy person. I have a happy and enjoyable life, including a loving family and many good friends.
For those of you who don’t know me personally, I pretty much live in the present. When something’s not bothering me, I promptly forget about it and move on and think everything’s fine now. Therefore I’m always a bit surprised and mildly insulted when symptoms come back later. (I thought you were gone. What are you doing here? Can’t you see I’m busy?)
Anyhow: If the description in (a) through (e) rings a bell with you, please e-mail me.
I can be reached at: currentresident [at] fitzes [dotcom].
Put something really obvious in the subject line such as answer to your bleg on “name that pain”, or I’ll accidentally delete you as spam. I get a lot of spam, so if your subject line is “hi” or “help” or “about your blog post” or “hot Russian singles want to sell you cheap Canadian Viagra” you’ll be cast into the outer darkness.
Wednesdays are traditionally the glorious mysteries. I finally got back to praying the Rosary today after a gaping hiatus caused by a succession illness (it is a physical act, and thus requires one or another physical abilities), chaos, and inertia.
What was on my mind as I prayed was my inability to accomplish certain tasks before me, and thus my reliance on God to take care of them. This is a good problem, because relying on me is not the wisest course, and in any case the tasks are God’s.
Here is a miracle, to give you an idea of the scope of the whole thing: I made a craft. Not just any craft; one that required both bright colors and straight lines. Also, I had to do it with supplies that I didn’t have spares of, which meant everything had to be done exactly right the first time. No sane person assigns me a job like this. Just never.
So anyway, I get around to the fourth glorious mystery, the Assumption of the Blessed Virgin Mary.
Do you know what our Lady did during that mystery?
Just laid there. Didn’t lift a finger.
God did it.
This seems to be the way it works. Want me to conceive the Messiah? I can’t do that Lord, but however you want to handle this go ahead. Out of wine? Son, could you take care of this please? So you’re saying the plan is that you’re going to die on that cross–? I’m just gonna stand here, and you figure out what the system is.
It’s not that Mary does nothing. It’s that she does only the part she can do, and lets God worry about the rest.
Request: If you have a charism for bringing empty jars to the attention of our Lord, please consider joining the newly-formed Catholic Evangelization and Discipleship Intercessory Prayer Team group on Facebook. It’s a closed group, but any member can add new members. If you are in the work of discipleship or evangelization and would like people to pray for your mission, please join and post your requests. (Also: Introduce yourself and I’ll add you to the pinned post of who’s who at the top.) Thank you!
I’d never even heard of the Legion of Mary. But this lady was fast. She had my name on those forms in an instant. There’s the x for your signature, here’s a copy of your prayers to say every day, and don’t worry, it’s not a mortal sin if you miss a day, but do keep up with it.
“But I don’t go to this parish,” I told her.
They weren’t picky.
I signed. And then I had to go home and explain this to my poor husband, a protestant who believed in neither the Blessed Sacrament nor prayers to Mary. Oops. Luckily he recognized the swift hand of God in answering my prayers for a better prayer life, and if it made no sense to him personally, who was he to argue with God?
And who am I to argue either?
That was all great until, as I wrote in 2015, things began to get complicated. It is difficult to pray the Rosary (or any other talking-prayer) when you get light-headed when you talk. The hagiographers won’t have any work to do with me, because I’m not one of those saints with heroic perseverance. After a long period of trial and error I finally decided to sub out the Office of Readings if I couldn’t reasonably pray the Rosary, since that’s far easier to pray along with silently. It’s reading. They put the word reading right there in the name of it.
(I thought about making myself a rosary to read. Like a slide show or something. But then I didn’t. I guess I should do that. And yes, I tried apps and things, but nothing suited.)
So then, as I wrote the other day, I got better again! Woohoo! Which means that I transitioned, slightly unaware, from World’s Worst Auxillary Member of the Legion, But She Has an Excuse to WWAML, No Excuse. I had forgot I could do this thing again.
But you know what? God didn’t forget, and neither did this other guy.
Enter Rosary, Stage Left; Saint, Stage Right
Two big things happened in the last weeks of December. I can’t remember which happened first. One was that in the course of cleaning out the house, I came across the stunningly beautiful rosary that a friend had given me as a gift some years ago. I used to pull it out for the Easter and Christmas seasons, but I’ve been slack about keeping up with liturgically-timed theme-changes lately, and honestly I had sort of, I’m mortified to admit this, forgotten it. But it pushed its way in front of my nose before Christmas, you betcha.
Then I forgot it again, because it was still Advent. I know! But it gets worse!
Meanwhile, my boss here at the Conspiracy posts that she got St. Andrew for her 2017 saint. He’s well-used among Conspirators, but still in good shape. So naturally I had to go compulsively find out who my 2017 saint would be, even though it was still firmly 2016, but you know, Facebook. Must click the link.
So I go, and I pray briefly, hit the button, get to the screen which tells you to pray, and I pray again. A Hail Mary this time. Hit the second button:
If you are in the Legion of Mary, you are now laughing manically and thinking about wiping up the coffee you just spewed all over your screen. Sorry about that, maybe you should read the blogs of more reputable members.
The Case of the Unblessed Rosary
So I was officially put on notice. No shirking in 2017, not for me.
Meanwhile, I again discovered that gorgeous rosary I’d re-forgotten, but had cleverly put on a shelf where I’d stumble across it more reliably. The second time, I remembered something else: I’d never gone and gotten that rosary blessed.
There are two reasons for its heretofore unblessed state:
(1) My friend who gave it to me is not a Catholic, she’s just an extremely thoughtful and generous person who had this beautiful thing she knew I’d treasure made for me.
(2) At the time I received it, I had no idea rosary-blessing was even a thing. No one tells you anything when you’re Catholic. You can go years and years not knowing all kinds of stuff “everyone knows.” Problem I might rant about another day, but for now, on to the happy ending.
So I’ve got St. Louis M. breathing down my back, a forlorn rosary dying to be put to its proper use, and hey, the year begins with the feast of Mary, Mother of God.
So yes, even though Father was miserable with a cold today at Mass and it pained me to ask him to say one more thing with that throat of his, I totally hauled that rosary out and had it blessed. And then I went home and used it. 1 down, 364 to go.
If you read this blog via e-mail or feed reader, or if you have Ad Block ensabled on your browser, FYI: Among our sponsors here at the Catholic Conspiracy are people who make and sell rosaries. If you’re in the market for Catholic or Christian-friendly goods and services, do kindly see if any of our sponsors are offering what you’d hoped to find. Thanks!
This is a post that sounds like satire but is not. This is a post about cold, hard, liturgical reality: The best Catholics are the slackers.
That’s right friends. You agonize every year about whether you’re doing Advent, or Christmas, or Lent, or Easter just right, and you have the pictures on Pinterest to prove it. Dear, dear one, lose your life and you’ll find it. The best way to be liturgically on the ball is to drag through life barely holding your head above water.
Here are five proofs hidden in the couch cushions at the home of that friend who never invites you over because her life is such a trainwreck. Not kidding. This works. Especially #2.
#1 No new music.
New music is for people who have time to learn things. Now mind you, I don’t object to the odd innovator. But nothing says in step with the season like singing last millennium’s music. Or the millennium before that. If it was good enough for Advent 1016, it’s good enough for me.
#2 No gratuitous shopping trips.
Christmas is so commercial! they weep. Not if you don’t have the time, money, or energy to go the store, it’s not. You don’t have to be poor in the spirit, just poor in something that keeps you out of the mall. I’ve tried it both ways. Not shopping is better.
#3 No decorating and entertaining excess.
Yes love, we’ve heard all about how so very tired you are from all the time and energy you spend getting your house (and office, and wardrobe) just so for the holiday season, and how much work it was to put on your fabulous collection of carefully tailored parties (one for clients, one for employees, one for the neighbors, one for the close friends, one for the other friends, one for the friends who can’t be with the other friends . . .). Sweetie pie, if you were really tired? You wouldn’t be doing all that stuff.
You know how tired people entertain? By sleeping. That’s how. It’s very entertaining, try it sometime.
Liturgical tip: Start the season utterly exhausted, and you’ll never, ever have to wonder if you’re losing the “real meaning of Christmas” amid all your busyness.
#4 Your Christmas tree will always go up at exactly the right time.
This is the great thing about trees: They look great anywhere. Your Christmas tree might be sojourning in the forest all winter this year — that’s very contemplative, you know. But imagine for a moment that you mustered the wherewithal to drag a tree, or some inventive product that reminds the casual viewer of a tree, into your home this holiday season.
Some Catholics, under those circumstances, would have to worry: Have I done this too early? Too late? When exactly is the tree supposed to enter the home?
Not you, exhausted slacker friend! If it arrives early, it’s an Advent tree, or else it’s you managing to get something done ahead of a time for a change. If it comes in the 24th, hey, perfect!
But what if, say, you pull it off the neighbor’s curb on the 26th? You’re a shining example of good stewardship, both financial and environmental. Rejoice — you’ve been heralded in a century-and-change of papal encyclicals. Woohoo!
#5 No skimping on the fullness of the season.
What’s the big rush in taking down the Christmas decorations?
Would it really be the feast of the Presentation if there weren’t a few reminders of the Nativity artfully displayed about your home? What about the Annunciation, huh? Are you so spiritually adrift on the tides of the seasons that you’ve never noticed the parallel between the manger and the tomb? It might be easier to catch those connections if you weren’t so keen to whisk away your baby Jesus to His summer home in the attic.
And of course there would have been no Easter if we hadn’t had Christmas first. Leaving out your past-due decorations is like living every day of your life in a dusty, slightly dented, but arguably beatific living Gospel.
While organized, industrious people pack up their holiday spirit in order to bustle onto the next big source of ennui, we slackers bask in the glow of eternity, our living-rooms perpetually witness to timeless truths.
Happy Advent! And other seasons, too, while we’re at it.
What’s with the radio silence? Let me just tell you.
But first, the reason I’m breaking it: My friend Sarah Reinhard asked me to blog on Theology of the Body stuff in the lead-up to this fall’sTheology of the Body Congress, which you should attend if you have the opportunity. The line-up of speakers is stellar, and yes I would go myself if I possibly could. So put that on your calendar.
The expression Theology of the Body among Catholics is a bit of a code word for, “Let’s talk about sex now.” I usually stick to code on these things. But there’s more to your body than just the parts and processes that make you a boy or a girl, as Susan Windley-Daoust will remind you periodically. I’m going to write not-about-sex today, and come back to racier topics here and over at Patheos in the next few weeks.
Now back on topic. A little Applied Theology and the answer to the question, “Why on earth has Jen Fitz completely dropped off the internet?”
Short answer is: I’m not doing as well, physically, as I would need to be doing in order to both take care of my primary vocation (marriage, parenthood) and this secondary vocation as a writer. So first things get to be first, and the rest has to wait.
The very, very, long answer:
But here is something completely cool, because God is like this: Just in time for me to have something someone really wants me to write about (instead of just me running my mouth off, which is my usual niche), I can totally sit at the computer and not be light-headed! Isn’t that cool?! I keep forgetting this new fact, and thus my e-mail is way behind. June was a pretty long month, computing-wise.
I theorize in part it was positional, which means I probably need to rearrange the workstation. Here’s an interesting link about cartoid sinus hypersensitivity, which might cause you to suspect I’m really an old man just posing as a pleasantly-plump middle-aged housewife, but you’ve seen the photos, so whom do you believe? Sports Illustrated or my cartoid sinus barocepter? Anyway, my parlor-trick for June was that I could drop my pulse twenty points just by, um, taking my pulse. No true cartoid sinus massage needed, just touch the thing.
It quit doing that, though, as far as I can tell.
Some other interesting body-things for this summer:
Dang it I can’t talk anymore again. The speaking-part works fine, don’t panic, it’s the getting light-headed while I do it that is at about 80% of the time. This is pretty common in tachycardia-themed autonomic dysfunction. (POTS people talk about this all the time in conversation, even though it never seems to make any list of medical descriptions, not sure why there’s that disconnect in the medical literature.) 80% isn’t 100%. On a good day I’m completely normal, on a lousy day I’ve given up even lip-syncing at Mass.
–> Autonomic dysfunction creates these weird eddies of backward expectations. Mass is pretty much my least pleasant activity, because it involves sitting still then standing still, with positional head changes (bad — I keep being reminded not to bow the head, just don’t do it), combined with talking. So on a miserable Sunday I can feel extremely overwhelmingly bad by the end of the hour. But because the problem is not at all with my heart’s ability to pump blood or my blood’s ability to hold oxygen, I’m the person who’s desperate to lay down while standing still, but will then escape without difficulty at full speed to the car and feel better as a result of the vigorous activity.
Basically I have this cardiovascular problem that makes being still feel worse and being active feel better.
Patients might be able to muster adequate energy for periods of time but it is usually short-lived and they tire quickly, not unlike a battery that discharges too rapidly. . . . A period of rest or sleep is generally required before energy levels are restored. Following rest a patient may demonstrate apparently normal stamina and a clinician will not detect weakness on examination . . . .
This is me completely: Do something, then flop on the floor utterly exhausted, and then in a bit I’m fine again. Happens hour-by-hour, and then also from day-to-day. More on that below.
I don’t know whether or not I have a mitochondrial disorder (very difficult to diagnose) but I get this, too:
Impaired oxidative phosphorylation [don’t know my cause] not only causes muscle fatigue but also muscle cramping with or without tenderness, or a feeling of extreme heaviness in the muscles. These symptoms are especially severe in those muscle groups being used, and patients often complain of discomfort in the legs or even muscle spasms.The discomfort may be felt immediately following the activity or later on, waking up the patient from sleep.
Funny story: I mentioned to a relatively new acquaintance that I’m prone to decrepitude, and the question she asked was, “So are you basically in pain all the time?”
The answer is that at this writing, no I am not. But I have picked up what is turning out to be mild-but-intractable intermittent pain (in my legs, if you’re curious), and yes it keeps me from sleeping well, and yes, I’ve tried all the things, and the things help quite a lot. (Other than deep breathing to relax, like the kind that works so well for childbirth — used to be my go-to, but now it just gives me a headache. Which stinks, because it’s a good method if your autonomic nervous system functions properly.) But I think it’s very funny because the words “every day” and “intractable” do apply even if the pain itself is not very bad. So if you use those adjectives, it sounds way worse than it is. I think most other people can also use those adjectives.
[By “intractable” I mean “intractable using means that don’t require a prescription.” I haven’t gotten around to being bothered enough to plead for the good drugs. So no, nothing to worry about at this time.]
And this cracked me up, because every receptionist I’ve ever met knows this about me now:
Exercise intolerance is not restricted to the large muscle groups in the body but can also involve the small muscles. Writing can be a challenge; too much writing leads to fatigue and/or cramping or spasms. The quality of penmanship can be observed to deteriorate over the course of a writing assignment with letter formation becoming more erratic and messy.
This is why you don’t want to receive handwritten correspondence from me. Nothing new, story of my life. Interestingly, I always take handwritten notes in classes, and if I don’t have a computer I’ll do my other writing longhand — but the writing degenerates fast into this baseline scrawl that’s just barely legible to me, and only because I already know what’s written there. Once it gets down to worst-level, I can sustain it for a long time.
And one last one which caught my attention, from the same source:
. . . Debilitating fatigue can occur with infectious illnesses, may outlast the other symptoms of the infection, and the recovery time can be very prolonged.
This thing I hate. I never know whether a cold is going to cost me a few days or six weeks. Weirdly, I used to go into nasty bronchitis every few years following a cold, and knock on wood that hasn’t been a problem lately. I just get all the fatigue. (Um, and I always have a cough. So, gosh, I don’t know. Don’t make me laugh and we’re good.)
Exercise does help. The supreme challenge is in figuring out how much to do. Too little, and you sleep poorly and lose conditioning. Too much, unfortunately, is not evident during the exercise. I can work out and feel great and be sure I’ve figured out a great balance between rest and exercise, and then at the end of the week completely collapse and require days and days of recovery before I’m functional again.
–> The convenient thing here is that I can in fact borrow time. If I know I want to be up for something, I can plan ahead, build up reserves, stretch them during the event through the clever use of pharmaceuticals, and plan to pay back afterwards. Difficulty being that the mortgage interest is steep. There’s no getting more out of the body than it has to give.
The inconvenience is that all the things I do are exercise, but some exercises are more valuable than others. So if I want to work on my core muscle strength, which is key to preventing the injuries to which I am prone, then I have to not work on helping you out with that thing you wanted me to do. Your thing is also exercise, but it’s a lower priority exercises, so out it goes.
Yes, I tried that thing you suggested.Not being snarky there. I’ve had a number of good friends recommend possible ways to improve the situation, and some of the ideas have been very helpful. (Even if the idea came after I’d already come across that suggestion and tried it, and thus could immediately report, “Yes! Thanks! That does help! Excellent idea, glad you mentioned it!”) Some things people have suggested and that I tried did not help for the reason proposed (I am not, for example, allergic to wheat) but do help for a different reason (minimizing wheat products makes more room in the diet for intensely potassium-rich foods, which help a ton).
So a thing that’s got me occupied this summer is obsessively managing all the micro-factors that can make the situation as better as possible. I think (but can’t be certain) that I’ve got the diet tuned to a spot where I can happily live off the things I seem to do best with, but also get away with deviating from the Ideal Thing at food-themed social events and no disaster ensues. If all that proves to be true, I’ll chat about it later. It might be just lucky coincidence.
Meanwhile, here’s the surprise of the summer:
It took me a long, long time to figure this out. Here’s the difficulty: The heat doesn’t bother me.
I live in a warm climate. I don’t mind being sweaty. I know how to dress for the heat, how to acclimatize as the hot season arrives, and how to get the most use out of a hot day. Since I cultivated these skills, I’ve never had any difficulty with the heat whatsoever, other than some mild irritation about the truly obnoxious portion of sauna-season, which you just have to deal with and move on. I even know the trick about watching for Seasonal Affective Disorder when the heat starts getting so annoying you hide indoors despite yourself. (Same solution as per winter – bright light & vitamin D).
The problem I had in figuring out this one is that (a) I’m still functional above the temperatures when people from up north start whining profusely, (b) I still don’t mind the heat or being hot, and (c) since I have any number of other things that also make me feel terrible, it’s not like I was able to say to myself, “Gee, I feel wonderful all the time except if I’m someplace hot.”
It’s a perfectly manageable problem, it just came as a bit of a surprise. Amusingly, my cold intolerance is getting worse, too.
The hardest thing: Not being able to concentrate. Since I’m a master-complainer, I don’t know that we’d call this my “chief complaint.” But it’s certainly my loudest. As in: If I told you I NEEDED the house to be QUIET so I could do this thing, that’s what I meant so please go OUTSIDE. This is the #1 reason I haven’t been writing. I’m home all day with four kids. There’s noise. There are interruptions. Note that my entire career as a writer has been carried out under these exact same conditions.
What happens therefore is that I drift through the day doing tasks that are super-easy, and then if I find myself in some unexpected situation like trying to cook while other people are in the room, it’s alarming to everyone just how badly things go (until I communicate my distress so emphatically that everyone goes and hides). And then I go back to easy things, and wonder why things that take my full attention just never get done.
So that’s the answer to the perennial, “How’s it going, Jen?” topic on this blog. I’ll emphasize here that as much I just used my crotchety trans-old lady powers to moan about the ailment for very many words, it’s not as bad as all that. But here’s a story that sort of sums up the situation:
Yesterday I was halfway through this post when I had to leave and get ready to go to a social thing at the lake. Sunday had been horrible, Monday was not that great, and Tuesday wasn’t impressing me. I was only going to this thing because (a) I wanted to go to it, and (b) my kids really, really, really wanted to go to it, and they’d done all the things I told them they had to do if they wanted to go.
So we went. And I was fine. Dreamy fine. No problems. Felt completely normal for the full three hours I was there, conversing, walking around, standing around, watching kids, etc. Some of the time, I’m completely, totally fine.
Moments like that can make you think you’re crazy. Maybe I just need to relax at the lake more often? Two reality checks:
Part of being fine was that I aggressively managed as many factors (fluid intake, electrolytes, staying out of the direct sun) as I could.
If it comes as a surprise to you that you went to an enjoyable, relaxing, time-limited social event and had no experience of illness during all three hours, probably the fact that this was an unexpected occurrence tells you something.
So we can add this to my list of signs something is not normal: If you get to where it’s a surprising occurrence when you feel well, we can infer that there’s a problem.
And dang my legs were like lead when I dropped a kid off at VBS this morning. So yeah, CAWOG. I’m rolling with it.
I figured since this was the All About Me post, if you made it this far you’re the type of person who wants to see my new haircut. (Hi Mom!) The third one is me posing in front of the dog’s blanket, which is still hanging up to dry on the screen porch a week after I told a kid to put it there. I guess it’s dry now. But I needed the contrast because I kept getting photos where the new haircut looked exactly like the SI photo shoot.