Need Your Help: Stories of Equal Access

I need your help with getting a door unlocked.

I’m a parishioner (and at last check parish council member) at a large and historically-significant parish.   Thanks to renovations over the years, there are three wheelchair-accessible entrances feeding the parish church.  Unfortunately, since November of 2017 all three of those doors have been locked.  The only way to get into the building during Sunday Mass or Saturday Confession is to either walk up a short flight of stairs (seven if I counted correctly) or wait around on the sidewalk hoping to flag someone down who will go unlock an accessible door for you.

Unfortunately, the pastor of the parish doesn’t seem to understand that it isn’t okay for someone with a disability to have to make advanced arrangements in order to be able to get inside the building for Mass or Confessions.  He’s otherwise a fairly stand-up guy, but he seems genuinely shocked that I would be angry about this issue.

I’m not above launching a massive public shame-storm, but that’s a weapon of last resort.  What I’d like your help with is attempting to show Father (and I tell you again: he is otherwise a pretty sane guy) that equal access matters.

Here is a form where you can share your story.  Can you share with him an example (or multiple if you’ve got them — fill out as many entries as you’d like) of how equal access, or lack of it, has affected your life?

My plan is to pass on to him your stories so he can see, person by person, just how painful it is to be the one stuck out on the sidewalk wondering how you’ll get in.  I’ll also put in a Mass intention for the collective intentions of those who share their stories (so Father L. gets to pray for you, cause that’s his job), and of course I’ll pray for you individually and I think he will too.

I’m not looking for angry.  He’s gotten plenty of angry from me, and believe me, I’m not as nice in regular life as I am on the internet.  I’m looking for your personal story of how being able to participate in parish or community life made a positive difference for you or someone you love, or how being excluded by needless barriers did the opposite.

The reality is that barriers keep people out.  After a year and a half of locked doors (in a previously accessible parish), the only regulars with disabilities are the few who are okay with the new status quo as second-class citizens.  Everyone else has disappeared.  If you showed up as a tourist (the parish receives many out-of-town visitors at weekend Masses), you’d follow the signs to a locked door and maybe succeed in waving someone down, or maybe just give up and move on.  As a result, Father L. no longer sees the people who are most affected by his decision: You’re all gone.

I need you to make yourself visible to him again.

Thank you so much.

I’ll post updates as I get them.  Also: If you choose to let me share your story (and only in that case — opt in or your story remains completely private), I’ll pick a few to post here and elsewhere, so that your voice gets heard far and wide.  Thank you!

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Image: No Accessibility Icon, courtesy of Wikimedia, Public Domain

Towards an Authentic Spirituality of Confirmation

I wrote to the DRE at the start of the school year, explaining that my teen wanted to be confirmed but that I was in the middle of a new job that was requiring 70-80 hour work weeks, so I really *could not* be the hand-holding parent going to a bazillion meetings and all that.  I requested that the parish come up with a formation program my teen could complete without parent attendance, and what with it being she, not I, getting confirmed, it seemed reasonable.

Despite the steady nagging of teens to become “adults in the faith,” the parish struggled intensely with the idea of working directly with a teenager.  I can get this, because I work directly with young persons, so I know that they are not universally organized and conscientious.   Teaching children to become adults requires risk-taking and persistence.  DRE’s thus tend to have an Augustinian wish: Give these teens responsibility, oh Lord, but not yet.

***

Over at the Register, Jason Craig writes “Why Confirmation is Not a Mere Rite of Passage.”  I give it a hearty amen in part because  I have shown up to a couple parent Confirmation-prep things lately, and apparently the indoctrination at religious ed on the “becoming an adult in the faith” is so strong that when I whispered to my teen a corrective to the presenter’s assertion that the sacrament of Confirmation was about you as a teen confirming you wanted to be Catholic, she whispered back, surprised, “It’s not??” I let the deacon feel my ire.  The mother is not amused by pseudo-theology.

The mother is, however, grateful.  If you’re going to lay into the parish staff for their irresponsibility, you have to be willing to do the work to offer something better.  We came home from that dreadful formation meeting with a challenge: What is the point of Confirmation?  It’s all well and good to say it gives you the Gifts of the Holy Spirit, but what does that mean?  How is it different from Baptism and the Eucharist?

A few days contemplation bore much fruit.  My husband and I, and hopefully the kids as well, found ourselves moved very deeply as we considered with awe the reality of this sacrament which, described imprecisely, is for your relationship with the Holy Spirit what the Eucharist is for your relationship with Jesus Christ.  That intimate union, that indwelling, that receiving of life . . . to speak of the action of the Trinity is risk material heresy, but whoa!  You want to shake a few shoulders and shout at the bishop with his well-meaning video for teens DO YOU HAVE NO IDEA WHAT IT IS YOU ARE FAILING TO TELL THESE KIDS?!!  Tithing and church service are great, and yeah I’d like more priests too (though I want to find out if there’s a trustworthy seminary first), but seek first the Kingdom of Heaven, guys!  Confirmation is one of the seven great mystical things, and you are missing out terribly if you think it is just a glorified membership drive.

Fortunately, the sacrament doesn’t wear off.  Even if your parish has hidden the glory of the Holy Spirit under the table cloth of mandatory service hours, and your teen’s formation program consists of Catholic-brand career-counseling, God in His humility is waiting, like the preschooler behind the door calling out “I’m hiding come find me!”  Ignore the distractions.  Go into the quiet room where God dwells and find Him there.  He wants to live in you.  He wants to make you His home.  He wants to make His life your life.  You were made for this.

***
The children are taught to list the Gifts of the Holy Spirit when asked what it is they receive at Confirmation.  You’re supposed to say that, instead of “Green light for my quince,”  or “To get my parents off my back,” when they ask why you want to be confirmed.  There’s an awful lot of talking about the gifts, and using the gifts, and of course you had to work hard attending classes and doing service projects and writing papers in order to be allowed to have the gifts.

It is so much noise.  Blather.  Idiocy.  Too smart for your own good.  Ditch the growing-up talk, because it is a childlike faith that our Lord requests.  Children, unsophisticated, believing, accepting, are unafraid to ask for what Confirmation is: I want the Power of God to live inside me.

That’s more than enough.

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Photo by Richard Bartz courtesy of Wikimedia, CC 2.5.

Vatican Clergy Abuse Summit Bingo

From the makers of that evergreen classic Bishop Press Release Bingo comes the game we’ve all been waiting for, Vatican Clergy Abuse Summit Bingo!

Unlike regular Bingo, with Vatican Bingo what doesn’t get said counts too!  Put your chips on the grey boxes at the start of the game, and you get to keep them there until someone starts talking.  Don’t worry, when the Vatican’s playing, you can be sure your chips won’t be extradited any time soon.

And lest you worry: The Vatican shut down the USCCB’s process last fall to replace it with this?  Fear not.  The USCCB wasn’t planning to talk either.

Manliness and a Perfect Funeral

Hathaway’s funeral was perfect.  Chanted Extraordinary Form Requiem Mass at the old but not old-old St. Mary’s church in Aiken, then procession to the graveside for a Melkite burial.  Nothing says “four last things” like a Dies Irae in the hands of a good cantor.

As our line of cars, lights on, hazards flashing, police escort, ambled down US 1 towards the cemetery, traffic of course made way.  But this is a land where funerals are still taken seriously, and even on the four-lane highway where there was no practical need to do so, most vehicles coming the other direction pulled to the side, stopped, and put on their lights, paying their respects.  You have no idea of it, I thought as I passed driver after driver putting life on hold for two minutes of stillness in honor of a complete stranger, but you are witness to the funeral of one of the world’s great men.

***

John’s daughter asked (shortly after his death) if I could speak at the funeral meal.  After the perfection of the funeral homily and the solemnity of the mass and burial, what I had prepared seemed woefully inadequate.  It also was not very gentle, but fortunately there was a line-up of nice friendly people to follow, including a dear friend with the gift for coming across as a big, chummy teddy bear while he reminded the audience of the value of redemptive suffering and the need for masses and holy hours of reparation.

I’m sure most people did not like what I had to say, but the one person it was written for thanked me for saying it.  Below is the text, with most of the typos removed.

***

When we try to explain the difference between men and women, we tend to resort to stereotypes.  We know that men possess, on average, more physical strength than women, so we use examples of large, muscular men performing heavy manual labor.  We know that men have an inborn, undeniable vocation as providers and protectors, so we reach for clear examples of those.  When we think of providers, we might give the example of a successful business owner, or an accomplished professional; or we might think of an ordinary workman or farmer putting in long hours at physically grueling labor in order to provide a simple but decent living for even a very large family.  We know that men are created to be protectors of the family and community, and thus we look to the sacrificial life of men who have careers in the military or as law enforcement officers.  These are not bad examples.  But they don’t get to the heart of what it means to be a man.

John Hathaway had the rare and excruciating vocation of showing the world what it means to be a man.

You could not look at John and think “typical big strong muscular man.”  (Though at times he astonished me at how strong he was.)  But what is a man’s strength for?  It is for serving God and serving his family.  John Hathaway used every ounce of his physical strength in fulfilling his vocation as husband, father, and Christian.  I remember him telling me the story of literally crawling to Holy Communion one time, so determined he was to receive Our Lord despite whatever parish he was visiting not noticing he needed the sacrament brought to him in the pew.  John was a wealth of medical knowledge – if I had a difficult medical question, he was on the short list of people I’d go to with such questions – because he was utterly focused on husbanding his strength, as the expression goes, so that he would be as strong as he possibly could be in order to serve his wife, his children, and God.

As a provider, John fell in the terrible predicament of those who are extremely talented but not in financially lucrative ways.  He was an English professor in a nation where adjunct professors sometimes literally live out of their cars because they cannot afford rent.   Many men find themselves in this position, willing to do whatever it takes to provide for their families, but thrust into overwhelming circumstances beyond their control.  The despair this can cause men is at times deadly.

John Hathaway deployed extraordinary determination and perseverance and ingenuity in figuring out, day after day, year after year, how to provide for his family.  And he did provide.  He absolutely embodied what it means for a husband and father to be a provider.

As a protector I want to talk about John’s role in defending his children’s very lives.

We live in a time when it is legally and politically and socially acceptable to say that John and Allie and Gianna and Josef and Clara should simply be killed.  They should never have been allowed to be conceived, for fear they not measure up to some ideal standard of human health.   Allie, the same Allie who has been a pillar of strength and a fount of practical help to Mary over this past harrowing week; the same Allie who is delightfully talented and devoted to sharing her talents with the community . . . is someone that even Christians will sometimes say, “it would have been better if she’d never been born.”

I would say John’s life work was one steady, undying protest against that evil.  He tirelessly spoke and wrote and worked to persuade the world that his children deserve to live.

This vocation of his was painful.  It was physically and spiritually exhausting. He deployed every spiritual and physical weapon at his disposal against the constant and at times overpowering despair and darkness that descended on his life.

I can recall at times literally thanking John for still being alive.  I thanked him for the depths of the agony he endured by dint of continuing to pursue medical care in order that he might, for as long as possible, be present in this life to his family.  I thanked him selfishly: I knew that death would be easier and more pleasant for him, and I knew that when that time came I would feel his absence profoundly.  John was a delightful person to know and to talk to and to be with.

In closing I want to commend Mary for her choice of a husband.  She has faithfully withstood no end of criticism for marrying a man who lacked the superficial traits that are idolized by our society.  But she has known what others don’t see: That she married a man who truly embodied manliness to its fullness.  He cherished her, he sacrificed daily for her and the children, and gave his life and every ounce of his strength to providing for and protecting his family.  He made his own and by extension their relationship with Jesus Christ his number one priority.  He was everything any man could ever aspire to be.

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The pale and fleeting beauty of the Shadowlands, as seen in the Jesuit church in Quito, Ecuador. Photo by Diego Delso, delso.photo, License CC-BY-SA.

On the Passing of John Hathaway

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I woke this morning to check on the progress of the hurricane and saw the eye was headed straight for the home of John C. Hathaway.  I logged onto Facebook to see how the family was faring, and learned that John had died (as unexpectedly as John Hathaway could ever manage to die) in the early hours of the morning.  If you knew John at all, you would find it entirely fitting that a hurricane should do a flyover to pay its respects.

(If you knew John at all, you would know that he would rebuke me sharply for saying it, but also that Santo Subito! are the words that come to mind on his departure from this life.)

So here is something interesting:  Back in 1931, Pope Pius XI extended the feast of the Maternity of the Blessed Virgin Mary to the entire church. It had long been celebrated in Portugal on October 11, so that was the day established for the feast.  Therefore if you check Butler’s Lives for this morning, whether for your own edification or in order to note the auspicious nature of your dear friend’s day of death, you’ll see this quote:

But one thing in particular, and that indeed one of great importance, We specially desire that all should implore, under the auspices of the heavenly Queen. That is to say, that she who is loved and venerated with such ardent piety by the separated peoples of the East would not suffer them to wander and be unhappily ever led away from the unity of the Church, and therefore from her Son, whose Vicar on earth We are. May they return to the common Father, whose judgment all the Fathers of the Synod of Ephesus most dutifully received, and whom they all saluted, with concordant acclamations, as “the guardian of the faith”; may they all turn to Us, who have indeed a fatherly affection for them all, and who gladly make Our own those most loving words which Cyril used, when he earnestly exhorted Nestorius that “the peace of the Churches may be preserved, and that the bond of love and of concord among the priests of God may remain indissoluble.”

You can read the full text of Lux Veritatis here, and doing so would be a fitting way to commemorate Hathaway’s legacy.

(Vatican II, which opened on this day, moved the feast to January 1 . . . opening the slot for Pope St. John the XXIII who gave us that council.)

There are many other things to say, and I hope to say them later.  For now, please pray for the repose of his soul and the consolation of his beloved family, to whom he was utterly devoted in his vocation as husband and father.

Updated: Fellow Catholic Writers Guild member (John was a writer and member of the CWG) has set up a Give-Send-Go account for the family, to cover their funeral expenses and other needs.  Your generosity is much appreciated.

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Details from the Ghent Altarpiece courtesy of Wikimedia here and here.

The #2 Thing Anyone Can Do to Help the Church

There are two myth-making forces at work in the McCarrick scandals.  One is denial.  Clinging to the idea that there are a few bad apples, and they are just so very sneaky and that’s why they got away with their crimes.

The other myth is that the good guys can fix this.  We imagine we can run over to Costco and pick up the plenty-pack of Accountability Spray, and with enough elbow grease the house will be squeaky clean again.  Everyone pitch in!

If the Church is a house, myth #1 is that the fridge is a disaster and needs to hauled to be the dump, can’t decide whether to fumigate the couch in the den or just burn it, and let’s rip out that musty carpet in the back bedroom — then everything will be fine again.  A few cobwebs and a squeaky staircase?  Typical old house.  Relax.

Myth #2 is that sure, we belong on an episode of Hoarders, but if we call in the team we can all work together until the junk has been cleared out and the walls and floors are all scrubbed down.

That’s not what we have.  What we have is extensive rot in load-bearing walls.

What does the rot look like?  It looks like this comment from the fabled orthodoxy-wonderland Diocese of Lincoln:

I’m glad someone has finally spoken about this.  A fellow-seminarian (now-priest) and I were tormenetd by MK’s [Msgr Kalin] behaviors for a long while.  Our experience was part of what led +Fabian to order that at least 2 people accompany MK on the stadium walks.  I wish it weren’t true, but it is.

What was happening is that Msgr. Kalin, who was both diocesan director of vocations and director of the University of Nebraska Newman Center, was molesting his students.  The former student explains:

Since you seem to be afraid to read between the lines, I will state it plainly: repeatedly asking to touch and be touched in inappropriate places, asking for “French kisses”, and doing these actions without being given permission — to say nothing of the entire grooming process by which these actions/gestures were normalized.  I finally said something after my friend walked into the chapel literally *shaking* after one of these episodes, because until then, I thought it was just me.  It was at that point I woke up to how twisted the whole situation was and had been for some time.  Now, think about the fact that this is coming from the person who made himself your confessor and spiritual director.

UPDATE: Here is an account of Wan Wei Hsien’s experience that provides a clearer timeline of events.

This is the same Msgr. Kalin who was the picture of a balanced commitment to priestly chastity in an interview for American Catholic: The Saints and Sinners Who Built America’s Most Powerful Church:

When I asked Kalin about homosexuality, he said, “I get to know a candidate pretty well before I recommend him to the seminary, and if I think someone is an active homosexual, I’ll take him aside and we’ll agree that the priesthood isn’t for him.  On the other hand, Bishop Flavin always said that he didn’t care what someone’s inclinations were, as long as he was sincerely committed to a chaste life.”

American Catholic by Charles Morris, p. 387

Predators cover their tracks.

A healthy, sane person would react to such betrayal with shock, despair, and disbelief.   If the lone-predator myth were true,  then when Msgr. Kalin’s deception was uncovered, a clear-thinking supervisor would do a thorough investigation and either exonerate the accused or determine the man was not competent for ministry.

What was bishop Fabian Bruskewitz’s solution to this problem?  Require seminarians to only visit their director in pairs.

That’s right: The bishop understands that the director of seminarians can’t be trusted alone in the room with a seminarian . . . but he still thinks the man is competent to direct the formation of the diocese’s future priests?

This is the behavior of people in abusive relationships.

***

Here’s an interesting article in that it shows you the shiny veneer of a dysfunctional family.  Compare the key players in that happy vocations story to the names in Rod Dreher’s efforts to dig out the facts on the Kalin case (quoted above).  Gives you pause for thought.

***

People in abusive or dysfunctional relationships behave in insane ways.  There is constant blame-shifting, avoidance of responsibility, and generating of excuses and distractions to cover over the real problems.  Anyone who tries to speak reason or point out real problems becomes the enemy.  The status quo must be preserved.  Everyone tied up in the abusive relationship has somehow come to believe that their safety is threatened if anything disrupts their twisted, tormented way of life.

So seminarians are sent to see their director in pairs.

A generation of priests in one of the most boomingly orthodox dioceses in the nation were formed by a notorious lecher who was left in office after his crimes were known to the bishop.

That’s not about McCarrick.  That’s about Bruskewitz.  Different theology, different politics, different dioceses . . . same problem.  All across the nation and around the world, whitewashed pillars of the church are decayed to the core with this rot of abusive and dysfunctional relationships.

***

I and others who have been writing about the McCarrick fallout get letters from church-workers, clergy and laity alike.  We get thanked for our open, outspoken coverage of the bishops’ failure of leadership.  And invariably there’s a coda: “I can’t say anything myself.  I have to be careful.”

Yes, I know about that.  I know about being pushed out of a parish ministry because I held someone accountable for a gross failure of common sense where child safety policies were concerned.  I know about silence and “discretion” that involves never, ever, speaking up with plain answers.  I know about people accused of sexual crimes against children threatening lawsuits if you share public information about the status of their legal case . . . even as they are in the process of inviting your own children to their home.

I know about that.

***

I also know that things are complicated.  I know that false accusations happen.  I’ve been the key witness in a case defending an innocent man against an egregious and absolutely fabricated, revenge-motivated accusation.  I know that decent people get overwhelmed in difficult situations, and we don’t always handle the moment in the best way.  I know that sometimes you are under the gun and you do something really dumb, and you regret it later, and you resolve to never do it again.  I know that sometimes you examine a situation carefully, and you still come to the wrong conclusion about the best way to handle it.  I know that sometimes you just don’t understand how serious a situation is, and you don’t treat it with the gravity it deserves.  Stupid happens.  It happens to all of us.

***

Here’s the difference between stupid and dysfunctional:  Healthy people don’t build their lives around defending and perpetuating stupid.

***

So what can anyone, in any state of life, do in response to the rot of abuse and dysfunction in our Church?

Of course #1 is to fast and pray.  You know that.  You don’t need a blog post about it.

The response that hurts is #2: You have to act like a healthy person.  You have to refuse to be part of the cycle of dysfunction and abuse.

The only way for the Body of Christ to be healthy is for members of that Body to be healthy.  The gangrene stops here.

***

That’s not fun.  It gets ugly fast, because the dysfunctional people will pull out every weapon they have to fight your insistence on sane behavior.  You can expect lying, evading, shunning . . . the works.

What does it mean in parish life?  It means you might not have much of a parish life.  It means that you might become the persona non grata, because you refuse to play along and pretend everything is fine.  It means you or a family member might be denied the sacraments.

***

Oh no!  In that case—

Think about it.  You’re afraid that if you refuse to sin, and if you refuse to be party to perpetuating sin . . . you’ll be cut off from the grace of God?

That’s not how God works.

How God works is that He rewards His prophets by having them thrown into a cistern.  He rewards His son’s obedience with the Cross.  But His grace is right there the whole time.

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Photo courtesy of Wikimedia, Public Domain.

Praying for Terrible Bishops

Up at the Register: How to Be Catholic When Your Bishops Are Not.  I am not gentle in this one.  A faith that depends on eyes-half-shut and pretending all is well in the Holy Catholic Church will not withstand the present onslaught, unless you’re extremely expert at lying to yourself.  I don’t think lying to yourself is a good option.

Meanwhile, let’s talk about praying for your bishop.  Here’s a thing to understand:  Your bishop was chosen for his cowardice.

Perhaps over the years you have wondered why your bishop seemed unable to accomplish much of anything.  You might have wondered why every statement out of the diocese was more watered-down than a glass of ice cubes on a summer afternoon.  You might have wondered why your parish and diocesan leaders seemed to find the clear and certain teachings of the Catholic faith just. so. difficult. to. praaaaactiiiiiiiiice.

Now we know.  It turns out that in the eyes of the Church’s top leaders, fecklessness in a bishop is not a bug but a feature.

With Cardinals like McCarrick at the helm, it’s a miracle the clergy accomplish anything at all.

Well, God can use that.

Because you know how God shows off? By doing His work through the crappiest instruments He can get.*

Are you a terrible person?  Then God can use you.  You can pray things like, “Lord, I am almost as wretched as my faithless, weak-kneed toad of a bishop, and so I know what dreadful danger he and I both face.  Indeed, were I in his shoes, I might be even worse than he.  After all, Satan hates bishops even more than he hates me.  Under full attack from the enemy, I’m not sure I’d last half an hour.  So if you could somehow spare us both from eternal damnation, and maybe even accomplish a few miraculous acts of virtue through us, I’d be most appreciative.”

Alternately, if you aren’t already praying from the Liturgy of the Hours, give it a look.  A sample from this morning:

Lord, listen to my prayer:
turn your ear to my appeal.
You are faithful, you are just; give answer.
Do not call your servant to judgment
for no one is just in your sight.

The enemy pursues my soul;
he has crushed my life to the ground;
he has made me dwell in darkness
like the dead, long forgotten.
Therefore my spirit fails;
my heart is numb within me.

I remember the days that are past:
I ponder all your works.
I muse on what your hand has wrought
and to you I stretch out my hands.
Like a parched land my soul thirsts for you.

Lord, make haste and answer;
for my spirit fails within me.
Do not hide your face
lest I become like those in the grave.

In the morning let me know your love
for I put my trust in you.
Make me know the way I should walk:
to you I lift up my soul.

Rescue me, Lord, from my enemies;
I have fled to you for refuge.
Teach me to do your will
for you, O Lord, are my God.
Let your good spirit guide me
in ways that are level and smooth.

For your name’s sake, Lord, save my life;
in your justice save my soul from distress.

Chicken Soup it is not.

***

Editing notes on the Register piece:

  • If I could do it over, I’d write “feckless simpering” instead of “simpering fecklessly.”  Sometimes we aren’t perfectly concise in our haste.
  • I regret that I did not write myself out a list of synonyms for the word “putrid,” as it occurred to me I should.  I woke up this morning with the stark realization that I had missed quite a few.

Well, that’s how it goes sometimes.  We live to write another day.

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Artwork courtesy of Wikimedia, public domain.  Bouguereau, I had know idea you had this in you!

 

*Hence the existence of bloggers.

 

Nature Builds on Grace

So imagine for a moment that in the space of two weeks you learn that your kid has a potentially life-threatening (but otherwise probably benign) tumor in her heart, and then you travel out of town to get it removed via open-heart surgery, and then you come home after and basically you’re done.*  In two weeks.

That’s crazy.  Far too crazy to be eligible for fiction, what with no foreshadowing, no crises, and a shocking denouement in which you get home and have to forbid your kid to clean her room, until you finally break down after a couple hours and let her clean her room.

Also it can’t be fiction because everyone was fine.  A little edgy, sure, definitely some adrenaline happened.  Garden-variety hospital snafus happened (ex: The Night of the Beeping Monitors). There was sunburn during the lead-up to the climax, and also my sister sitting alone on the beach nobly guarding my phone, which was actually with me in the beach parking lot talking to the insurance people. But mostly everything was fine.

Truth: While we were busy with our dramatic medical incident, many friends were enduring much worse suffering.  That is, if by “worse” you mean people-actually-died ‘n stuff.

Since there can therefore be no riveting memoir, here’s my how-to quick guide on How to Throw a Successful Medical Crisis in Just Two Weeks!

 

1.  Try to recruit about a thousand people to pray for you.  If you do this, then your most anxiety-prone child of the bunch can be the one who needs to have her sternum cracked and her heart sliced open, and it’ll be fine.  By “a thousand” what I mean is: The actual, literal number 1,000.  That’s my ballpark estimate of how many seriously praying people were on this job.  Do that.  You want these people.  What they do matters.

2. Happen to invite the exact right relatives to come stay with you.  Try to get them to arrive for vacation the day before you go in to receive the shocking diagnosis.  Whom to invite?  The ones who keep the house clean, provide competent medical advice, have a couple cousins of just the right ages and personalities to provide 24/7 emotional support for the kids, and who are restless enough to keep everyone busy with activities so you don’t have much time to sit around dreading things.

2a.  Dessert.  The children insist you want to invite the relatives who firmly believe in running out to the store to buy three boxes of brownie mix, because there weren’t any brownies in the house.  I say if you do the dishes, vacuum, and wash the sheets before you leave . . . you make all the brownies you want, I can be healthy again after you go home.

3.  Go to the beach.  Oh, you just want to sit around googling statistics about rare surgical procedures?  That’s why you arranged for your sister to show up: Because she is going to take you to the beach, and once you’ve viewed one excision of a right ventricular mass you’ve viewed them all.  Go to the beach. Your kid is gonna have a very boring and painful summer once surgery happens.  For goodness sake go to the beach.

Backlit tree with egrets at sunset.
Sunset at the rental house on John’s Island. It’s hard to be stressed here.

4. Comparative Advantage for the win.  So you are going to ask all your friends with relevant experience for their advice, and then you will take it.  One of the things you’ll learn is that there are different types of work for different people at different times.

  • The aunt who is perfectly capable of watching your healthy kids is the person who needs the power of attorney so she can do her thing and not need to call you at just the wrong time.
  • The ICU nurse who has gotten your kid stable post-op, and she is not tired, and she is one-on-one with your kid, is the person who should stay up all night after surgery watching your kid while you go to the hotel and get as much sleep as you can.
  • The spouse who does better on disrupted sleep should take night shift in the step-down unit.
  • The spouse who does better at asking hard questions and won’t be intimidated by the platoon of physicians descending on your room during rounds should do day shift.
  • The people who cook astonishingly good food available at local restaurants should feed you during shift change.
Dinner at Fuel. Tourist tip if you’re ever in Charleston: King Street is for people who like normal food. MUSC neighborhood is for people who feel cheated if the taco is just a regular taco with no purple cabbage on it.

5.  A sane parent is a priceless treasure. There is no substitute for a parent who is willing to do whatever it takes to support a child in a medical crisis.  Thus more sides to the shape of parental-sanity:

(A) If you don’t take care of yourself, you won’t be able to do the whatever it takes when the need arises.

(B) Whatever it takes includes doing some hard things, but not all the hard things.  If you don’t have to be there doing a thing, go do something that makes you better able to do the things only you can do.

So yeah: I totally made a teenager deliver me my good cruiser so I could go on a bike ride when it was my turn to get out and get some fresh air.  Yes, the spouse and I got out for couple-time during shift change, so we could see daylight, talk to each other without interruptions, eat something good and be ready to go back in for more.

 

Lawn by the ER at MUSC
If your kid kicks you out of her room because she doesn’t want to smell your heated-up frozen dinner, then go lie down in green pastures on the lawn by the ER. It’s okay to take pleasure in good things even when your kid just had major-major surgery.

6.  You can just be real about the situation.  Back to that whole 1,000-person prayer team:  Yes, the SuperHusband and I, and everyone else, were worried and scared.  Left to my own devices, not only could I worry about this child’s impending doom, I could also conjure up scenarios in which other children met tragic fates while we were all distracted by the one having the official crisis.  Drowning? Fatal car accident?  Nobody’s safe!  Ever!

Nobody is ever safe.  Our kid came through surgery just fine, and other people were receiving bad news.  Our days were getting better and better while other people’s lives were getting worse and worse.  It’s a fallen world.  You don’t have to pick a single All-Purpose Mood that somehow perfectly matches the gravity of the situation, because the truth is that the situation is complicated, and some really good things are happening and so are some bad things.  So just whatever.  Don’t feel beholden to the Feelings Police.

7.  Eternity is for real.  The thought of my kid dying is unbearable.  Also: It could happen on my watch.  Indeed, the expected death rate for my children is 100%, so unless we all die in the same train wreck, some of us get to be bereaved.

This is awful.  Believing in God doesn’t take away the intense grief that comes with losing someone you love.

But here’s what it does do: It means you aren’t hanging all your faith on doctors.  You can be sensible and do practical things to try to ensure the best odds possible on your kid’s survival, but the weight of Everything Forever And Ever Amen doesn’t hang on your shoulders, and it doesn’t hang on the doctors’ shoulders.  When you know that God has everything under control, you don’t have to be in a non-stop panic, frantically trying to save your kid from eternal nothingness.

You ask God to spare you the suffering, and hopefully He spares you the suffering.  But you also know that the separation of death is temporary, and no matter how bad things get in this life, no matter how black your grief, no matter how much your life sinks into the abyss of loss if the worst should happen, it isn’t the end of the story.

And then if your kid’s not dead and actually she’s recovering pretty well, you can leave her to the spouse who has day shift and get out for fresh air and sanity.

Green sea grass with sailboats on the water in the distance.
View of the marsh and estuary from the Lockwood Drive greenway.
Concrete walk along The Battery, Charleston, SC, with house and palmetto trees.
The Battery, where cars are as slow as the bicycles that pull over to let faster traffic pass.

 

*It’s not done until Pathology says it’s done . . . but we’re not going there right now.

Miracle from Mont Sainte Odile

This is a story from the last day of the Epic Vacation, and about a subsequent miracle that happened the week after, and my cat.  It comes up now because a friend of mine could use an eyesight miracle, so if you’d kindly pause and say a St. Odile Pray for Us, I’d be most grateful. Thanks!  Now for the touring+miracle story.

 

The kids and I had planned to visit Mont Sainte Odile while we were staying out in the village on the first leg of our trip.  The monastery is not far from the concentration camp, so the obvious plan was to visit one site in the morning and one site in the afternoon.  That plan, like many of our epic plans, was thwarted by our persistent difficulty in getting out the door early each day.   We left Alsace for the first time having neglected her patron saint.

After a week in Chamonix and a few days around Paris, we returned to Alsace to stay in downtown Strasbourg.  I decided to hang onto the rental car since the marginal cost was relatively low and I wanted to keep our options open.  For the last full day of the trip, the kids voted that we take one more adventure in the countryside and go see that monastery after all.

 

Here’s the tomb of Ste. Odile, where I asked for her intercession on a variety of concerns, not least of which that I would like very much to return again to Alsace, thanks.

Here’s the ancient chapel in the monastery where my children stood before the crucifix bickering with each other.  There’s a door from here into the main chapel where we could hear holy people next door praying the Mass (we’d arrived mid-Mass and chosen not to interrupt).

In the monastery gift shop you can purchase all the usual Catholic merchandise, including pun-laden cologne:

The word “eau” means “water” and is pronounced like the letter O.  Eau d’Il means “water of He,” with the obvious spiritual connotation, and is pronounced the same way as the name Odile.   (Grammatically it’s as awkward as the Son-sun puns.) This pun on the word for water, though, is wildly entertaining to those of us who can’t resist a pun, because Ste. Odile is famous for her miraculous spring:

At this place, Odile struck the rock, and the water that gushed forth cured the blind man.  Pilgrims, halt your steps and rest there, to pray to God that he will enlighten your souls as well at this miraculous spring. 

You can purchase the miraculous (but un-blessed) water up top at the monastery where it’s offered for a suggested donation in little plastic bottles, or you can bring your own container and hike down to the spring and collect water yourself for free.

I made the hike and drunk down my water bottle so I could refill it with water from the spring, because who can resist?  The kids ended up not joining me on the hike as-planned, but the road out of the monastery passes right by the spring, and they filled up their now-empty water bottles as well.  We were totally armed for . . . whatever it is Catholics do with unblessed water from miraculous springs.

Once back in town we emptied the car, cleaned it out, filled it up, returned it to the rental place, and went home to pack-up for our departure the next day.

Now it is absolutely ridiculous to plan to bring bottles of water in your checked luggage home from Europe.  It’s a recipe for wet laundry.  But our Catholic instincts were way too strong here, and so I carefully put our bottles of spring water inside large ziplocks and packed them amid a suitcase of clothes that wouldn’t get ruined if there was a leak, and which would absorb any leaked water so that no one else’s luggage got wet.  Miracle #1: Our water made it home intact.

So we get home and unpack and I’ve got these old used plastic water bottles containing un-blessed water from the miraculous spring.  I have a decorative bottle my grandmother gave me that was sitting empty, so I filled that bottle and corked it and set it out on the mantel, Catholic memento achievement unlocked.  There was, however, more water than would fit in the decorative bottle.  What to do with it?

I put it in the pets’ water bowl out in the yard.

Now for the big miracle.

This kitten is one of the pets.  Martin the Cat came to us as a stray, and when he arrived he had runny, gunky eyes.  Efforts by the vet over the past several years to treat his eyes have been ineffective.  We eventually decided that since he wasn’t in any obvious pain, he was just going to be a cat with an untreatable eye problem and there was nothing more to be done.  He’s a great little neighborhood cat, underappreciated at my house but who does the rounds providing companionship to several of our lonely neighbors who would not be able to take on a cat of their own, but who appreciate his daily visits.

Here’s the miracle: About a week after I put out the St. Odile water for the pets, I noticed Martin the Cat’s eyes were completely cleared up.  They haven’t gotten runny since then.

Natural vs. Supernatural

Is it possible Martin’s eyes just happened to have spontaneously cleared up that particular week, and St. Odile had nothing to do with it?  Sure.  It’s not like I poured water over his eyes and watched  an instantaneous  transformation.  What I do know though is that he had this eye problem that didn’t respond to any conventional treatment, and after drinking water from a spring whose water had cured a blind man, and a spring under the patronage of a saint whose symbol is a book with two eyes on it, after drinking that water, the cat was cured.

That’s all I know.

If the week after getting one of his rounds of eye drops from the vet my cat had been cured, I’d assume it was the vet’s treatment that had done the job. So I give St. Odile the same benefit of the doubt I’d give the veterinarian.

Video: The monastery bells ringing to announce the start of mid-afternoon prayer.   All through Alsace and beyond, church bells like this would ring for five minutes or so, straight, to summon the faithful to Mass.  The Epic Vacation category contains all the posts related to our vacation.  Some of them are pure tourist-info, and others are more commentary and stuff.

New App Simplifies Trafficking, Incest & Statutory Rape

CHARLOTTE, NC — A new App called Nurx ensures sex traffickers, abusive relatives and overbearing boyfriends are not burdened by complicated encounters with health care professionals, while ensuring that the girls who service them never, ever, meet a physician, nurse, or clinic work who might intervene and contact the authorities.

“If a teenage girl is engaging in a behavior that has potentially life-threatening consequences, that’s not something her parents need to know about,” the health care provider explained.  “It’s better just to give her a medication with known fatal side effects without ever consulting a physician in person.”

Critics have questioned whether teenagers are able to reliably choose their own prescription medications, but teachers and school administrators all agreed in an industry consensus statement, “If there’s one thing we can say about teenagers, it’s that they are reliable, diligent, and filled with a deep sense of personal responsibility.”

The document went on to say, “No teenager would ever lie on a form on the internet.  Sexual predators don’t ever use fake identities on the internet either. So this is completely not a public health concern.”

“We care about girls’ reproductive health and freedom,” a public health official observed.  “Many girls have said they’d ‘rather die’ then let their parents know what they’re doing. Nurx is here to make that possible for them.”

 

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Need a prescription?  Internet doctors can help you with that.  Photo courtesy of Wikimedia [CC 3.0]